Stevens - Johnson Syndrome Foundation December 2012 Newsletter Best Wishes for a Happy Holiday Season and a Happy New Year! The SJS Foundation has
Stevens - Johnson Syndrome Foundation
December 2012 Newsletter
Best Wishes for a Happy Holiday Season and a Happy New Year!
The SJS Foundation has a new look! This year we have made some new and exciting changes starting with our fresh updated logo and website. If you haven’t visited the website recently we hope you will take a look: SJS Foundation
Thank you to all of our wonderful artists that participated in the first SJS Kids Calendar Art Contest! The 2013 Calendar is available online SJS Kids Calendar
We hope you will like us on facebook where you can meet many SJS families and share support.
SJS Foundation Facebook
We have also added our SJS/TEN Grief support facebook for families that have lost their loved ones to SJS/TEN: SJS Grief Support
A Big thank you to everyone that wrote to their governor requesting a proclamation for SJS Awareness Month! We are so thankful for your support. As a result we received 17 proclamations naming August SJS Awareness month. They are displayed on our website.
SJS Awareness Proclamations
Thank You Jonah Lake!
TENS Survivor Jonah Lake took a shot at SJS or should we say a lot of shots with his SJS Awareness Free throws for hope fundraiser! Jonah shot baskets for over 24 hours. The event was live streamed! Many of us sat glued to our computers watching as Jonah and his family and friends spread SJS awareness! Thank you Jonah you are awesome!
Petition for FDA Adverse Drug Reaction Reporting System
Over 200 thousand people die each year from an adverse drug reactions. The truth is there are probably many more but no one has an actual account because there is NO mandatory reporting system to the FDA! This needs to change! Won't you please take 5 minutes out of your day to help us? Please sign the FDA Petition for Adverse Drug Reactions!
