Jason is an 11½ year-old Chinese boy with fair skin, white ("bleached-blond") hair and beautiful blue eyes! Jason’s special need is albinism. I can testify, along with other adoptive parents, that the lower vision that accompanies this special need is completely manageable. Jason needs a family.
Jason has been described as both introverted and outgoing. Perhaps it varies depending on his circumstances! He gets along well with others and enjoys helping other children. At the age of 8 he shared that he enjoys the game of badminton and aspires to be a car driver when he grows up. He initiates hugs with caregivers with open arms and a smile!
There is a term in Jason’s file that translated, “marginal intelligence.” What does that mean? I know that I wanted to know more as an advocate, as would naturally any prospective parent. So let’s chat about it. I pored over his file and interview with a caregiver and this is what I found.
First, his file at age 6 states that his physical and intellectual development is “normal.” (Yes, that caused me to scratch my head.) Then I noticed that the file states he was buttoning his clothes at the age of 24 months. Hmmm…my three-year-old has not accomplished that and it appears that is a normal developmental milestone for a 3-4yo. There were many other impressive developmental milestones recorded with no explanation in the file as to why that term is listed next to albinism.
Next, something caught my eye...an IQ score of 76. Immediately I googled and realized that number was so close to 80 which is in the average range. I then recalled that, although my children with albinism have not received an IQ test, they have been evaluated developmentally by a psychologist who had no concerns. My children are very smart, yet part of their testing was visually-based...and the professional said this type of testing was not fair to a child with low vision because it doesn't represent an honest reporting.